Monday, September 16, 2013

Project SEARCH High School Transition Program: a unique, business led, one year school-to-work program that takes place entirely at the workplace

Wonderful program and resource for those families searching for a transition program.

The Project SEARCH High School Transition Program is a unique, business led, one year school-to-work program that takes place entirely at the workplace. Total workplace immersion facilitates a seamless combination of classroom instruction, career exploration, and hands-on training through worksite rotations. http://www.projectsearch.us/
Experts from:
7 Tips for Helping Your Child Manage Stress


The key to helping kids manage stress is teaching them to problem-solve, plan and know when to say yes and no to activities and commitments, she said. It isn’t to “make everything smooth and comfortable.”

“If you don’t teach [your kids] how to manage stress, they will self-medicate with food, drugs and alcohol.” In other words, kids will reach for something to make them feel better right away, and usually it won’t be something healthy, she said.

Here’s how you can help your kids manage stress successfully.

1. Stop over scheduling.
 One of the biggest stressors for kids is being over scheduled, Lyons said. And yet, today, kids are expected to pay attention and perform in school for seven hours, excel at extracurricular activities, come home, finish homework, and go to bed just to do it all over again the next day. As Lyons said, “Where’s the downtime?”

Kids need downtime to rejuvenate. Their brains and bodies need to rest. And they might not realize this by themselves. So knowing when your child is over scheduled is important.

Lyons suggested looking at your kids’ schedules over the course of a week and making sure that there’s enough downtime — “when you’re not watching the clock.” Are there several hours on the weekend or a few nights during the week when your child can simply kick back and relax?

Also, “pay attention to how your family is eating their meals. Is everybody eating on the run, in the car, grabbing and going? That’s an indicator that too much is going on.”

2. Make time for play.
 Lyons emphasized the importance of “play that isn’t pressured.” There’s no lesson, competition or end goal, she said. Younger kids will do this naturally. But older kids may forget how to simply play.

Combine play with physical activity, which is critical for well-being. Some ideas include: riding your bikes, throwing around the baseball, wrestling and hiking, she said.

3. Make sleep a priority.
 Sleep is vital for everything from minimizing stress to boosting mood to improving school performance, Lyons said. If your child isn’t getting enough sleep, that’s another red flag that they’re overscheduled, she said.

Again, reducing commitments helps. Also helpful is stressing the importance of sleep, and creating an environment that facilitates it. For instance, keep TV – and other electronics – out of your child’s bedroom. (“There’s no research that says TV is good for kids.”)

4. Teach your kids to listen to their bodies.
 Teach your kids “to understand their own bodies and the physiology of stress,” Lyons said. For instance, sit in the car with your child, and press the gas and brake, and listen to the engine revving. Explain that “our body just revs and revs, and then it wears out and says ‘enough.’”

Encourage them to listen to what their bodies are saying. While it’s normal for a child’s stomach to feel jumpy on the first day of school, leaving class because their stomach hurts or waking up repeatedly with a headache is a sign there’s too much going on, she said.

5. Manage your own stress.
 "Stress is really contagious,” Lyons said. “When parents are stressed out, kids are stressed out. If you’re living in an environment with one thing after another, your kid is going to pick up on that.”

She underscored the importance of showing your kids how to relax and effectively deal with stress. “They have to see you slowing down.”

6. Make mornings calmer.
 A disorganized home is another stressful trigger for kids, and this is especially evident in the mornings. Lyons suggested making mornings smoother, because this “sets the tone for the day.” This piece has specific suggestions.

7. Prepare your kids to deal with mistakes.
 For kids a lot of stress comes from the fear of making mistakes, Lyons said. Remind them that they’re not supposed to know “how to do everything or do everything right.”

Also, while making good decisions is an important skill to learn, the skill that might be even more important is learning how to recover from a bad decision, Lyons said.

”We can really stress out our kids by not helping them understand that screwing up is part of the process.” Help your child learn to figure out the next steps after a bad decision or mistake. Help them figure out how to fix it, make amends, learn the lesson and move on, she said.


Overall, Lyons suggested parents look at the bigger picture. “You can’t live a stressful life and then teach stress management.”

 Tartakovsky, M. (2013). 7 Tips for Helping Your Child Manage Stress. Psych Central. Retrieved on September 16, 2013, from http://psychcentral.com/lib/7-tips-for-helping-your-child-manage-stress/00017829

Thursday, August 15, 2013

Back to School: Helpful Suggestions for Easing into the Year.

It's that time again:  What "Back to School" means for many families

This annual 'end of summer' shift can signify of myriad of changes for teens, including entering high school, enrolling in a new school, transitioning from wilderness to residential placement, reintegrating back into school or college after a therapeutic school, and various other anxiety-producing adjustments. 

For some, the end of summer simply means getting back into the swing of things and becoming accustomed to the routine and structure of school after a summer of leisure, play, or work. 

Whatever the change, parents often wonder how best to support their child through this time. Similarly, parents may also struggle with their own end of summer shift in environment and feel a heightened sense of uncertainty and apprehension during this time. 

Below are several helpful suggestions for easing into a new school year:

1. Check in with your kids about how they are handling the upcoming (or current!) change. Be aware of body language and subtleties that may alert you to their true level of anxiety or stress.

2. Create a routine. On some level, we all crave structure. Especially adolescents--even if they claim otherwise. Provide several predictable and stable daily activities your family can count on and be accountable for.

3. Set boundaries. Curfews and time with friends most likely will look different during the school year than it did during summer. Be firm. Expect pushback.

4. Be on the lookout for signs that your child (or yourself) is having a difficult time adjusting...Isolation, irritability, changes in friends, reluctance to go to school, and secretiveness can all be signs of struggle.

5. Especially if your child is re-entering 'traditional' school after a therapeutic placement, be aware that this transition is in and of itself stressful and potentially intimidating. The 'safety net' of their therapeutic environment is no longer there and your student may feel vulnerable, unsure, and highly susceptible to old patterns.

6. Let go of your expectations. Yes, we mean it. Transitions are messy and clinging to a belief of how things are 'supposed' to look is counterproductive. Practice boundaries and accountability, without losing flexibility and the acknowledgment that things don't have to be perfect. 

7. If you hoped/expected your child to be home for the start of the new school year and it didn't happen, acknowledging your feelings about this is a must. It is ok to be disappointed, sad, or frustrated...It is not ok to pull them early to satisfy these uncomfortable and difficult emotions. 

8. Personal consistency is key, especially in times of external or environmental change. Fluctuating on household or family expectations, rules, or limits sends conflicting and anxiety-producing messages. In two-parent households, it is your job as parents to provide a unified front. This means being proactive, communicating, and working through parenting differences. 

9. Be mindful of your own worries and emotional reactions during this transitional time. "Back to school" can bring about disruptive changes to your own daily routine, and often, increased time alone during the day. Have a plan for what will fill your time, especially if this is the first time your child has been away. 

10. Stay present in the moment. Avoid looking too far into the future and trying to predict what may happen. All of this planning and strategizing will be in vain if you are not acutely aware of what is happening right now in front of you. 

Author: Emily Long for Horizon Family Solutions


Friday, August 9, 2013

Kaiser Foundation Health Plan, Inc: Class Action Settlement

"If you are a subscriber of Kaiser Foundation Health Plan, Inc. and you, or your dependent, have been diagnosed with an autism spectrum disorder from April 8, 2004 through June 30, 2012, you could receive benefits from a class action settlement.

Kaiser Permanente has recently agreed to pay $9 million to settle a class-action lawsuit that alleged that the health plan illegally refused to cover behavioral therapy for children with autism before the enactment of a state law (SB 946) required them to do so. Kaiser will establish a fund to reimburse any class members who paid out-of-pocket for the therapy prior to the state law. Any remaining funding will go toward autism research.

This settlement resolves a class action lawsuit brought by Plaintiffs on behalf of a class of Kaiser members over whether Kaiser improperly denied coverage for Applied Behavioral Analysis (ABA) and Speech Therapy (ST) for those with an Autism Spectrum Disorder (ASD). The settlement avoids costs and risks from continuing the lawsuit; it reimburses monies paid or owed for ABA and ST by you; and it releases Kaiser from liability.

The settlement will provide up to $9,290,000 to reimburse Kaiser members who spent or owe money for ABA and ST to treat ASD. To qualify, you must submit a claim form and supporting documentation. The settlement also requires Kaiser to follow certain practices in providing ABA and ST to those with an ASD in the future.

Court-appointed lawyers for the class of Kaiser members will ask the Court for up to $2,890,000 to be paid separately by Kaiser, as fees and expenses for investigating the facts, litigating the case, and negotiating the settlement."


Monday, June 17, 2013

The relationship factor: when special needs challenge a household

The relationship factor: when special needs challenge a household
Written by: Cindy N. Ariel for http://www.autismsupportnetwork.com/


Becoming a parent for the first time changes our identity forever. There is a balancing act between caring for the needs of children and putting time and effort into the maintenance and growth of ourselves and our relationships. Frequently we must redefine our values and relationships with others. This transition in the development of family life is challenged even further by disability or chronic illness. "There is a strain on any marriage whenever a baby is sick. And we always have a sick baby," according to Josh Greenfield, the father of a child with autism, in A Child Called Noah (1970).

The kind of chronic stress that raising a child with special needs entails can affect relationships at their weakest points. This is just as true for families who have "volunteered" by adopting children with special needs or providing a foster home. According to the U.S. Census Bureau (2000), 47% of all first marriages fail and 57% of all marriages end in divorce. Although the findings are inconsistent, there is general consensus among the experts that while the divorce rates are comparable, there appears to be more reported marital distress among families of children with special needs (Seligman and Darling, Ordinary Families, Special Children, 1997).

Together you and your partner dreamed of a healthy child--now you face a life very different from what you imagined. Your overwhelming feelings, both individually and combined, are normal and natural in the situation but very difficult nonetheless. The needs of the children are often complex and illusive.

Searching to find the cause of children's developmental problems and the best treatment can be a long hard journey. Getting wrapped up in the stresses and strains of everyday life, relationships inevitably suffer from lack of attention. Communication problems, lack of time and energy for personal, marital, and family activities, and social isolation affect many families. When a disability or chronic illness is discovered, powerful emotions surface and may put relationships on trial. How can couples understand each other in the wake of such devastating pain?

For a relationship that is fragile or unstable, disability can be "the last straw." On the other hand, challenging life events can serve as catalysts for change. Some families disintegrate while others thrive despite their hardships. People can emerge from crisis revitalized and enriched. Hope for relationships can really spring from the crises people experience when their child has a disability.

If you and your partner are parenting a child with special needs, here are some suggestions to help your relationship:

Work to understand each other's needs.
Family life can be a test of love and resilience, so taking good notes and working to understand each other's wants and needs are vital to the success and survival of an intimate relationship. Life has veered sharply from what you had expected it to be. Try not to blame each other for the situation. It takes time to sort this stuff out. Be kind to yourself and each other about how difficult this can be.

Spend alone time together.
While the issues in any particular relationship are complex, it can be a good start to plan time together alone, even if only for a few hours. In study after study, people who report their marriages to be satisfying describe their spouses as their best friends, and people who are best friends have activities that they enjoy together. Most people get married, in large part, because they enjoy each other and make each other feel good. Who would have married their spouse if the last time they relaxed and/or had fun together was months ago? A close bond between partners can help parents through the rough spots. You can start with sharing a cup of coffee or tea, dinner out, or a movie or concert.

Take care of your individual selves.
Your children have conditions that may require lots of care and supervision. In the struggle to advocate for our children's needs, our own needs as individuals and as couples get lost. Many people stop focusing on their marriage, but this never helps. As hard as it may sound at first, start to think about taking care of yourself and adding some fun and enjoyment into your life even though it can take a long time for this to feel okay. Take some time for yourself doing things you enjoy. This can be anything from physical exercise or journaling to just grabbing time to read the newspaper or a good book.

Reach out.
When possible share the responsibilities at home by working together on chores, childcare, and education. It is helpful when couples both work to learn about their child's disability, prepare for and attend IEP meetings, etc. Get involved in the special needs community if you can. There's so much to manage everyday that reaching out to your partner, relatives or friends can help lessen the burden.

Communicate.
When a person is in pain he or she may withdraw, or become frustrated and angry. It's hard to talk about something we have no power to change or fix. At times the reactions of couples can become polarized or opposite. For example, one may notice problems in the child and tend to worry and feel negative while the other holds hope and optimism that in time everything will be fine. Try to consider all your feelings toward your child-- both positive and negative-- and discuss issues in ways that will help both of you feel understood and find solutions to problems. In general, the way out requires working through the painful feelings with one's partner and arriving at some form of joint acceptance and effective co- parenting strategies.

Seek assistance.
Sometimes a mental health professional (a social worker, psychologist or psychiatrist) can be helpful to you in understanding the needs of the children, yourself and your marriage. Some people are reluctant to take this step, but when it becomes hard to function from day to day, this kind of help may be in order. Just as you would consult more than one specialist for your child if necessary, do likewise for yourself. If your partner is too discouraged, then start by yourself. Sometimes a change in one partner changes the chemistry of the situation for the better. It is intelligent and wise to acknowledge the needs of yourself and your marriage over time as well as your child's needs. Your special family is worth it!


In spite of grim statistics and feelings of being overwhelmed, having a disability in the family can have a positive impact as well. Here are some suggestions to offer comfort and direction for couples as well as singles who are parenting a child with special needs:
1.         Communication is key, so
            a.         Resist the tendency to blame
            b.         Ask for what you need from others; also take good notes about your partner's needs
            c.         Listen actively and with compassion to each other; tell your partner what he or she is      
                       doing right.
2.         Add some fun and enjoyment in your life-- alone and with your partner. If you worry too              much about leaving your child with someone else, take your beeper or cell phone.
3.         It helps to be as active as you are comfortable being in the community as a whole and in the                 
            special education community in particular.
4.         Exercise-- almost any form of exercise will lift your sagging spirits if you do a form of         
            exercise that you enjoy and do it regularly.
5.         Journaling-- writing down thoughts and feelings and experiences is helpful for many of us 
            trying to put things into perspective.
6.         Support groups-- It is often helpful to share experiences, thoughts and feelings with others who 
            are in the "same boat" and can understand.
7.         Break problems down into more manageable pieces.
8.         Remember that you are both on the same parenting team-- not competing or fighting          
            against each other.
9.         Seek professional guidance when necessary. It is not a sign of weakness to seek help when you 
            need it. On the contrary, it is wise to think of your needs as well as those of your children.
10.       Keep in mind that a hard life can still be a good life!

Written by;
Cindy N. Ariel, Ph.D. and Robert A. Naseef, Ph.D. are psychologists who specialize in helping couples cope with special needs in their family (www.alternativechoices.com). They are the co-editors of "Voices from the Spectrum: Parents, Grandparents, Siblings, People with Autism, and Professionals Share Their Wisdom" Naseef is also the author of the highly acclaimed book, Special Children, Challenged Parents: The Struggles and Rewards of Raising a Child With a Disability


Wednesday, June 12, 2013

“The Transition into Summer”


“The Transition into Summer”, by Esther B. Hess, Ph.D.


Most developmental specialists concentrate on advising parents how to help their child with the challenges preparing for the transition back to school with little to no mention on the difficulties that our children face with the ‘freedoms’ supposedly offered through the lazy days of summer. The truth is that the same developmental lags that account for the struggles in September are equally responsible for the melt downs in June. And much like in early fall, I suggest that summer can be made into an enjoyable experience, if parents take the time to create a plan that offers stability and certainty for their youngsters with special needs.

1) If your school district’s budget permits, check out summer school options. While a scaled down program and typically new classroom might initially confuse children on the spectrum, ultimately our kids are relieved to continue within the rhythm of the academic year.

2) Look for a camp program that fits your child’s strengths. If your child is able to navigate with typical peers, summer might be an ideal time to enlarge your child’s inclusion possibilities. Explore programs that your child has an interest in (animal themed, science minded, etc.) and check to see if the camp’s policy encourages attendance for children with developmental differences.

3) If you plan to travel during the summer, pick a destination and stay a while to let your child get used to the new environment. Touring is stressful for most people, but for children with autism, navigating numerous airports and getting use to new hotels can feel nightmarish. If you do feel that your child is ready to ‘see the world’, let them prepare with you a travel book of different places and activities that they will be exposed to, so that a social story (check out www.socialstories.com) can be created to help them prepare for each upcoming destination. Don’t forget to schedule numerous breaks in the day to give your child a chance to regroup and reorient before the next activity.

4) Beyond transition concerns, the underlying neurological issues that create challenges for our children on the spectrum do not go away in the summer. Create a summer program that takes advantage of therapeutic opportunities by considering the addition of an intervention that you had put off during the school year due to your child’s crowded schedule. For example, therapeutic horseback riding is great way to help with awareness of others, motor planning and your child’s posture control, while social skills groups give opportunities to practice the tough task of making and keeping friends, while keeping other people’s perspectives in mind.

5) Make a regular play date schedule. Not only do our children learn valuable skills by figuring out how to navigate with peers, but also informal social gatherings can offer parents and neuro-typical peers support and camaraderie.


By taking the time to thoughtfully plan ahead, parents can support the transitional challenges of our special needs kids and ‘take the bite’ out of the dog days of summer. Enjoy –and don't forget the sunscreen! Esther B. Hess, Ph.D., Executive Director, Center for the Developing Mind. For more information check out http://www.centerforthedevelopingmind.com/.